We were just normal parents that never thought anything like cancer could or would happen to our child, until it did. To be told "Nothing more can be done for your child" is simply heart wrenching. We found ourselves scouring the internet for someone, anyone who could offer our little boy a cure or at least a treatment that may give him a chance but there was just nothing available for him. How could this be?
Every 9 days, a UK child will be diagnosed with DIPG. These children currently face the same prognosis as our Alfie did in 2013. DIPG is both inoperable and incurable and the median survival time for children with a DIPG is sadly just 9 months.
Brain tumours are the biggest Cancer killer of children and young adults in the UK, with 450 children being diagnosed with a brain tumour every year. Over £500 million is spent on Cancer Research every year and yet less than 2% of UK funding goes towards Brain Tumour Research.
Each year, The Brain Tumour Charity invest over £2.5million into world-class brain tumour research covering both lab and clinical research. Alfie Bear's Journey Fund aims to help them in the fight against childhood brain tumours, specifically DIPG by raising awareness and funds for research to help children affected by a DIPG tumour.
Our Alfie Bear was a little fighter and together we will continue his fight for future children and their families. #childrencantfightcanceralone